February 2014
Monday 3rd February, cycle day 31. I was due on yesterday and I am still waiting. My pain was not too bad yesterday during the daytime. Even my energy has actually been high enough for me to do some gardening for 2 days in a row (not the light type of gardening either but the heavy type – cutting down bushes/trees, digging up roots etc.). However by the time I went to bed I was starting to feel uncomfortable, that I am about to start my period feeling. My lower back, kidneys and around my ovaries were all starting to ache badly, as were my breasts. Luckily I was able to get a good night’s sleep last night. I woke up at 6.30am, got out of bed and went to the loo at 7.00am. Since then I have had a bowel movement 9 times and it is only 1.40pm. the last 3 times have been extremely painful to the point where I have cried out in pain as I feel my bowel moving. My bum is also getting sore where I have been to the loo so much. I am already warn out from a mix of lack of energy due to the flare up that is starting and having to go up and down the stairs so much this morning. The pain level is creeping up and I just cannot get comfortable.
I had a kip this afternoon I just could not keep my eyes open any longer. It was only for an hour and was only a light sleep because of the pain and uncomfortableness. I have been taking Paracetamol and Ibuprofen today but it is not working again. I still have not come on my period yet but the spotting has now started. The bowel movements have settled now as well which is good. I have been a total of 11 times since 7.00am and it is not just coming up to 7.00pm I have just been for a wee and got a sharp pain deep inside just above my belly button which is strange I am so fatigued already. I just hope that I can keep it under control. I am still getting the urge for a bowel movement. It looks like Micro Mike is going to get lots of cuddles tonight. Today was my day off work, I have an early shift tomorrow and then a day off Wednesday. The end of the week is busy but by then hopefully this should have eased.
I had a good night last night again. Well a good night up to about 4.00am when I got up to go to the loo for the 2nd time that night. When I went back to bed I could feel a twinge just enough to feel uncomfortable but at 5.00am the pain suddenly shot through my lower back, kidneys, abdominal area etc. the pain level was a 10+. I took Ibuprofen and Paracetamol to ease it enough for going into work in the morning. However by 5.20am I realised that it would not ease enough and that I would yet again have to phone in sick. Even if the painkillers suddenly worked and eased the pain it had taken so much out of me that I felt so weak and sickly I knew I would not get through the day. At 6.00am the pain had still not eased, in fact it seemed to be getting worse than the 10+ it was an hour before. I decided that my only chance of easing the pain now was to take 30mg Codeine Phosphate. Even after taking the Codeine I did not notice the pain level go down, however it had made me drowsy and knocked me out so although I could feel the pain I did not care about it. I am about to have a very hot bath, try to ease the pain. When I woke up the pain level had gone down to a more manageable level of 8 but I can feel it creeping up again i have taken more Ibuprofen and Paracetamol. I really do not want to take anymore Codeine if I can avoid it. I am still waiting for my period to start properly, all I have is spotting. I have a heat pad on my back and Micro Mike on my front. Well it finally arrived this afternoon. The pain level is still 9. I have just had to take another Codeine as the Paracetamol and Ibuprofen have not worked. I just hope that it works better than it did this morning. I am at my wits end with this pain and it is only cycle day 1.
Last night I had a so-so night, one of those drug induced types of sleep. When I woke up the pain level had gone to a level 6 which is great. It has varied between a 5 and 6 all day today. I have felt slightly hung-over though and very tired. This is one of the reasons why I hate taking Codeine. I am so happy so happy though as I managed to ride it out and did not have to give in and go to accident and emergency, even though at one stage it seemed like the best option. It can only get better from now on. Well for this month anyway.
I survived this month. Today my friend at work made me laugh he cannot say Endometriosis so he keeps saying that I have got Itchy Itchy Moses. I am still so tired it seems 95% of the time I am struggling to keep my eyes open and I have no energy what so ever. When I went to the loo for a wee today, several times I had a shooting pain straight through the front of my side going down to my pelvis. My pelvic pain is still constant. It is a level 4 all the time. I cannot believe that this time last year I was very sick but did not realise how bad I was. Little did I know that in 6 days’ time I would be sitting in Accident and Emergency being told that I could either stay in overnight, but as it was Sunday nothing would be done until the following day or I could go home and have an emergency gynaecologist appointment the next day. It is an odd feeling as it comes to the year anniversary that I had my leaking cyst, paralysed ileus and blocked bowel. A whole year and I am already getting worse again. Just one completely pain free day with normal energy is that too much to ask?
I have had enough of this pain. I have decided to try a TENS machine. I have tried one before, before I was diagnosed, but it did not work. It has now got to the stage where I am willing to try/retry anything. What’s the worst that could happen? The booklet say to try and do 20 minutes every day, at the start of treatment longer may be needed.
Today is Valentine’s Day and my husband has truly spoilt me. We had a curry that he brought, as well as custard donuts. He got me a card, bunch of roses, a teddy bear, bag of Maltesers and a bag of Randoms. We do not usually do Valentine’s Day, we get each other a card and every year since we have been married my husband has brought me a bunch of flowers. This year has been lovely, and I am as healthy as I could be at the moment which is good. On Sunday it is my husband’s birthday I am taking him to the cinema. I am due to ovulate any day now as well. I just think would it not be brilliant is I conceived this month J, especially with all of the special dates this month. I am still trying to keep my hopes up, it is hard but hope is all I have at the moment.
I am feeling really odd today, as it is a year ago that I was my bowel paralysed and at the exact time that I am writing this I was having my NG tube inserted - the first one. It is a mad feeling that I was so ill this time last year and this year I am doing a 50 hour week at work. And there was me last year thinking that I was not going to make it to the next day let alone a year down the line. I wonder if other people get this weird feeling a year or more down the line after they have been through something just as bad. I will have to find out.
I got through last week at work OK, 50 hours with only one day off. Today was my well-deserved day off I just chilled out. I had my “Day 21” Progesterone blood test and what a palaver that was. I got there 15 minutes early, was called in, sat in the chair, rolled up my sleeve and then remembered I had forgotten my paperwork. The nurse said that she could not take the blood without the paperwork (which I understand) she said that if I could get it and get back to the doctors surgery by 11.00am (it was 10.20am) then she could still do it. I felt like a complete numpty. I managed to get the paperwork and get back in time, and she was able to take the blood. The nurse that done my bloods was not the nurse that I normally have there and I warned her like I do with anyone that taking my blood can go ease or can be a pain in the backside. This time I was right my body decided not to play game again.
She had a feel on my right arm for a good vein, however she could not find one. So she looked at my left hand. She said that she had found a vein. She inserted the needle and my body decided not to play ball not give up any blood. I told her that that can happen with me, and that I had drank a lot of water the day before to make it easier for them. Four or so attempts later she managed to get blood. I now have one very bruised and sore arm.
You know I said about that feeling I have at the year anniversary of my operations, well I was chatting to some people who have also had a bad time in hospital due to illness and they have said that they too get this feeling. This makes me feel a bit better knowing that it is normal to feel like this.
A year ago today I had to have my husband help me wash my hair because I was struggling to do anything. I would then be taken to Accident and Emergency and to be readmitted in the early hours of the morning because I was in so much pain and very bloated. This was due to my blocked bowel caused by my Endometriosis.
So this time last year I could not go for a bowel movement. This year I have been at least 4 times today and all have been a bit soft. It is Wednesday evening now and my arm is still bruised and very sore after my blood test on Monday morning.
I had a kip this afternoon I just could not keep my eyes open any longer. It was only for an hour and was only a light sleep because of the pain and uncomfortableness. I have been taking Paracetamol and Ibuprofen today but it is not working again. I still have not come on my period yet but the spotting has now started. The bowel movements have settled now as well which is good. I have been a total of 11 times since 7.00am and it is not just coming up to 7.00pm I have just been for a wee and got a sharp pain deep inside just above my belly button which is strange I am so fatigued already. I just hope that I can keep it under control. I am still getting the urge for a bowel movement. It looks like Micro Mike is going to get lots of cuddles tonight. Today was my day off work, I have an early shift tomorrow and then a day off Wednesday. The end of the week is busy but by then hopefully this should have eased.
I had a good night last night again. Well a good night up to about 4.00am when I got up to go to the loo for the 2nd time that night. When I went back to bed I could feel a twinge just enough to feel uncomfortable but at 5.00am the pain suddenly shot through my lower back, kidneys, abdominal area etc. the pain level was a 10+. I took Ibuprofen and Paracetamol to ease it enough for going into work in the morning. However by 5.20am I realised that it would not ease enough and that I would yet again have to phone in sick. Even if the painkillers suddenly worked and eased the pain it had taken so much out of me that I felt so weak and sickly I knew I would not get through the day. At 6.00am the pain had still not eased, in fact it seemed to be getting worse than the 10+ it was an hour before. I decided that my only chance of easing the pain now was to take 30mg Codeine Phosphate. Even after taking the Codeine I did not notice the pain level go down, however it had made me drowsy and knocked me out so although I could feel the pain I did not care about it. I am about to have a very hot bath, try to ease the pain. When I woke up the pain level had gone down to a more manageable level of 8 but I can feel it creeping up again i have taken more Ibuprofen and Paracetamol. I really do not want to take anymore Codeine if I can avoid it. I am still waiting for my period to start properly, all I have is spotting. I have a heat pad on my back and Micro Mike on my front. Well it finally arrived this afternoon. The pain level is still 9. I have just had to take another Codeine as the Paracetamol and Ibuprofen have not worked. I just hope that it works better than it did this morning. I am at my wits end with this pain and it is only cycle day 1.
Last night I had a so-so night, one of those drug induced types of sleep. When I woke up the pain level had gone to a level 6 which is great. It has varied between a 5 and 6 all day today. I have felt slightly hung-over though and very tired. This is one of the reasons why I hate taking Codeine. I am so happy so happy though as I managed to ride it out and did not have to give in and go to accident and emergency, even though at one stage it seemed like the best option. It can only get better from now on. Well for this month anyway.
I survived this month. Today my friend at work made me laugh he cannot say Endometriosis so he keeps saying that I have got Itchy Itchy Moses. I am still so tired it seems 95% of the time I am struggling to keep my eyes open and I have no energy what so ever. When I went to the loo for a wee today, several times I had a shooting pain straight through the front of my side going down to my pelvis. My pelvic pain is still constant. It is a level 4 all the time. I cannot believe that this time last year I was very sick but did not realise how bad I was. Little did I know that in 6 days’ time I would be sitting in Accident and Emergency being told that I could either stay in overnight, but as it was Sunday nothing would be done until the following day or I could go home and have an emergency gynaecologist appointment the next day. It is an odd feeling as it comes to the year anniversary that I had my leaking cyst, paralysed ileus and blocked bowel. A whole year and I am already getting worse again. Just one completely pain free day with normal energy is that too much to ask?
I have had enough of this pain. I have decided to try a TENS machine. I have tried one before, before I was diagnosed, but it did not work. It has now got to the stage where I am willing to try/retry anything. What’s the worst that could happen? The booklet say to try and do 20 minutes every day, at the start of treatment longer may be needed.
Today is Valentine’s Day and my husband has truly spoilt me. We had a curry that he brought, as well as custard donuts. He got me a card, bunch of roses, a teddy bear, bag of Maltesers and a bag of Randoms. We do not usually do Valentine’s Day, we get each other a card and every year since we have been married my husband has brought me a bunch of flowers. This year has been lovely, and I am as healthy as I could be at the moment which is good. On Sunday it is my husband’s birthday I am taking him to the cinema. I am due to ovulate any day now as well. I just think would it not be brilliant is I conceived this month J, especially with all of the special dates this month. I am still trying to keep my hopes up, it is hard but hope is all I have at the moment.
I am feeling really odd today, as it is a year ago that I was my bowel paralysed and at the exact time that I am writing this I was having my NG tube inserted - the first one. It is a mad feeling that I was so ill this time last year and this year I am doing a 50 hour week at work. And there was me last year thinking that I was not going to make it to the next day let alone a year down the line. I wonder if other people get this weird feeling a year or more down the line after they have been through something just as bad. I will have to find out.
I got through last week at work OK, 50 hours with only one day off. Today was my well-deserved day off I just chilled out. I had my “Day 21” Progesterone blood test and what a palaver that was. I got there 15 minutes early, was called in, sat in the chair, rolled up my sleeve and then remembered I had forgotten my paperwork. The nurse said that she could not take the blood without the paperwork (which I understand) she said that if I could get it and get back to the doctors surgery by 11.00am (it was 10.20am) then she could still do it. I felt like a complete numpty. I managed to get the paperwork and get back in time, and she was able to take the blood. The nurse that done my bloods was not the nurse that I normally have there and I warned her like I do with anyone that taking my blood can go ease or can be a pain in the backside. This time I was right my body decided not to play game again.
She had a feel on my right arm for a good vein, however she could not find one. So she looked at my left hand. She said that she had found a vein. She inserted the needle and my body decided not to play ball not give up any blood. I told her that that can happen with me, and that I had drank a lot of water the day before to make it easier for them. Four or so attempts later she managed to get blood. I now have one very bruised and sore arm.
You know I said about that feeling I have at the year anniversary of my operations, well I was chatting to some people who have also had a bad time in hospital due to illness and they have said that they too get this feeling. This makes me feel a bit better knowing that it is normal to feel like this.
A year ago today I had to have my husband help me wash my hair because I was struggling to do anything. I would then be taken to Accident and Emergency and to be readmitted in the early hours of the morning because I was in so much pain and very bloated. This was due to my blocked bowel caused by my Endometriosis.
So this time last year I could not go for a bowel movement. This year I have been at least 4 times today and all have been a bit soft. It is Wednesday evening now and my arm is still bruised and very sore after my blood test on Monday morning.