May 2014
Where did April go? It is 1st May already!!! This year is going way too quickly. I hope my health in May will be like April. As I am writing I can honestly say that I feel 99.9% like a normal person. My energy levels have been higher than they have been for some time. I have been spending every possible nice dry day in the garden. I even went out more times last month that I have in a long time. Yesterday afternoon I even had the energy to go for a bike ride after work. I had planned only a little one up and down the brook to strengthen up my muscles (I am prone to getting ‘Jelly Legs’ when I cycle) then when I am stronger I will cycle to my mum and dads. So anywhere I dug out my helmet and cycling gloves had my bright orange hoodie on, got my bike out of the garage and it’s got a flat tyre and me with no pump. Gutted!!! Must get myself a pump. Last time I went cycling was with my sister a couple of months before I had my operation last year. I had plenty of energy in and if I could not cycle I decided to remove the rock garden. This evening I even done some exercise (stretches, step ups, yoga etc.). I am feeling really positive at the moment my friend gave me 2 books to read:-
I have just got back from my hospital appointment and although it is not good news, as such, we are happy we are moving on. I shall start by going back a few days, to 9th may, where I was so glad it was my day off work. The day before I could feel my abdomen cramping up. I woke up early for my day off but had absolutely no energy what so ever. I could not bring myself to get out of bed until lunchtime. I was also in a fair bit of pain. At lunchtime I managed to get myself out of bed and made it down stairs and onto the sofa where I stayed for the rest of the day. I was glad I was getting it out of the way on my day off as on the Saturday we were very busy at work. That day I was bleeding very heavy. I dozed off during the day several times and slept all night. Even though I was in a fair bit of pain the fatigue was so strong that not even world war three would wake me, well until early hours of the morning when I did wake up in pain then when the painkillers took the edge off I fell back to sleep.
The next morning I woke up feeling in less pain than the day before, but it was still bad and my energy levels had hit rock bottom. I had to call in sick there was no way that I could get through the day at work. I always feel bad about doing this. I feel guilty even though there is nothing I can do about it. Anyway the day went similar to the day before apart from the bleeding was a bit less.
Sunday I finally got my levels back up a bit and the pain had started to ease. The bleeding was also very light.
Then I woke up this morning! The morning of my appointment and my energy levels had dropped again. The pain was slightly up as well. And because I was nervous about what may be said I had really bad nausea, worse than it had been for the past few days.
As we were in the waiting room at the hospital the pain began to increase. When we were finally called in by my gynaecologist we went into his office.
He asked how I was, of which I replied in pain. He said that he could see that I am in agony by the way that I was sitting. I told him not agony this time just very uncomfortable. He said that he wants to get my pain levels back under control and suggested a Prostrap injection to stop my periods completely for 3 months this was a shock. I was expecting something but this was far from what I thought that he would say. He said that the injection has been known to reduce the inflammation caused by the Endometriosis and sometimes reduce the actual amount of endometriosis. He then went on to say that after the 3 months he will operate again to remove my endometriosis and my swollen fallopian tube (if he feels that he cannot fix it, which he doubts that he can by looking at the pictures but he will know more when he operates). The injections should have reduced the inflammation by the time I have my operation which should in turn reduce the risk (which is still higher than normal) of a repeat of what happened last year with my bowel. But like I said there is always a risk of a repeat. I signed the consent form and joked with him saying every time I sign the consent form I get rushed into hospital a week or so later for an emergency operation. He chuckled at this.
The intended benefits of the operation are:-
Under the any extra procedures which may become necessary during the procedure he ticked blood transfusion and other procedure. He put next to this open surgery (where they would go through my existing scar) the actual procedure will be done by a laparoscopy, and a stone (temporary colostomy bag. This would only be needed if something does go wrong with my bowel and it will then need time to heal.
After that he will refer us for IVF. Like I said I am happy that we are moving on and now know what is happening now. All this starts next month, because I have already started this month’s Clomifene cycle. So it is the last chance saloon for a while this month. I am worried about a reoccurrence of last year but if it happens there is nothing that I can do about it. At the end of the day it will be worth it in the end. Just get through this month then next month’s period and then I get to give my body a rest from the constant pain before I have my operation.
I wish that this nausea would settle down as well as my pain. I thought that the nausea this morning was just due to my hospital appointment but I was wrong I have had it all day. Please go away.
I have already told my supervisor at work that I am to have another operation in September and that I will explain properly when he is in on Thursday. Tomorrow I will go into work slightly earlier and have a word with the PR manager to let her know what is happening. It is a shame that she is leaving as she understands Endometriosis (she suffered from it before she had her children) and is really supportive. She leaves in July I just hope that the person taking over her job is going to be as understanding as she is.
Well I have taken my last Clomifene. It was such an odd feeling knowing that whatever happens this month (pregnant or not) I shall not be having any more periods for a while either because I am pregnant or because I have started Prostrap. I am sitting in the garden in this lovely hot weather listening to the birds singing and the buzz of a bee moving from flower to flower thinking about how I feel this month. It is a big change everything in my life since 3rd September 2011 is about to change. I know both scenarios (pregnancy/Prostrap) will be for the better and my body should hopefully get a rest for a while. I think deep down I know that I will have to have the Prostrap and operation. I already know that I will not get pregnant this month but I must try and keep hopeful. I will try but I know it is going to be hard.
My period went on for 8 days one day it would be heavy the next hardly anything then heavy again back to a medium flow. Really strange for my periods to be like that. Normally they start heavy and gradually get lighter until about day 6 or 7 when I am barely spotting which then lasts for a few days. I am still spotting now on day 11. I am still getting cramps in my abdomen and both left and right sides of my pelvis. The pain is going round to my lower back. Talking of my back whenever I sit or lay down I get a feeling that I have never had before it feels like a lot of pressure going up my spine (only the lower part). And I guess it is where my kidney is on my right side it feels like that area is swollen and there is a lot of pressure being but on that area. It feels extremely uncomfortable. On a good side my energy levels have yet again come back to normal. It took so long, the whole of my period took so much effort to even get out of bed, and on some days I just could not even do this simple task. I have just been for a wee and my whole abdomen and where all that pressure is just contracted. I am sure it will all settle down after all I am only a few days after my period. Just hope it will settle before Sunday. We are having our first BBQ in our house. I cannot wait, just hope that the weather is as lush as it has been this weekend. I know it is meant to be rainy and thunderstorms from tomorrow onward. Let it get it out of its system now then be lovely on Sunday please. And Monday for that fact as it is the Surrey County Show. Then the weather can do whatever it likes.
OH MY GOD I over done it yesterday I felt sore last night but thought that it would pass. But when I woke this morning I was very sore. It just seems to be getting worse. I cannot sit without the pressure shooting pain up my lower back and around my right side.
- Reclaiming your Life… Your guide to aid healing of endometriosis by Carolyn Levett – This seems like a good read at the moment from the little that I have read. I love reading and hearing about other people’s stories and how they cope and what has helped them.
- Recipes for the Endometriosis Diet also by Carolyn Levett – I have not read this book yet but will do after I have read the first book.
I have just got back from my hospital appointment and although it is not good news, as such, we are happy we are moving on. I shall start by going back a few days, to 9th may, where I was so glad it was my day off work. The day before I could feel my abdomen cramping up. I woke up early for my day off but had absolutely no energy what so ever. I could not bring myself to get out of bed until lunchtime. I was also in a fair bit of pain. At lunchtime I managed to get myself out of bed and made it down stairs and onto the sofa where I stayed for the rest of the day. I was glad I was getting it out of the way on my day off as on the Saturday we were very busy at work. That day I was bleeding very heavy. I dozed off during the day several times and slept all night. Even though I was in a fair bit of pain the fatigue was so strong that not even world war three would wake me, well until early hours of the morning when I did wake up in pain then when the painkillers took the edge off I fell back to sleep.
The next morning I woke up feeling in less pain than the day before, but it was still bad and my energy levels had hit rock bottom. I had to call in sick there was no way that I could get through the day at work. I always feel bad about doing this. I feel guilty even though there is nothing I can do about it. Anyway the day went similar to the day before apart from the bleeding was a bit less.
Sunday I finally got my levels back up a bit and the pain had started to ease. The bleeding was also very light.
Then I woke up this morning! The morning of my appointment and my energy levels had dropped again. The pain was slightly up as well. And because I was nervous about what may be said I had really bad nausea, worse than it had been for the past few days.
As we were in the waiting room at the hospital the pain began to increase. When we were finally called in by my gynaecologist we went into his office.
He asked how I was, of which I replied in pain. He said that he could see that I am in agony by the way that I was sitting. I told him not agony this time just very uncomfortable. He said that he wants to get my pain levels back under control and suggested a Prostrap injection to stop my periods completely for 3 months this was a shock. I was expecting something but this was far from what I thought that he would say. He said that the injection has been known to reduce the inflammation caused by the Endometriosis and sometimes reduce the actual amount of endometriosis. He then went on to say that after the 3 months he will operate again to remove my endometriosis and my swollen fallopian tube (if he feels that he cannot fix it, which he doubts that he can by looking at the pictures but he will know more when he operates). The injections should have reduced the inflammation by the time I have my operation which should in turn reduce the risk (which is still higher than normal) of a repeat of what happened last year with my bowel. But like I said there is always a risk of a repeat. I signed the consent form and joked with him saying every time I sign the consent form I get rushed into hospital a week or so later for an emergency operation. He chuckled at this.
The intended benefits of the operation are:-
- Treatment of pelvic pain,
- Treatment of hydrosalpinx (my swollen fallopian tube),
- To improve fertility prior to IVF.
Under the any extra procedures which may become necessary during the procedure he ticked blood transfusion and other procedure. He put next to this open surgery (where they would go through my existing scar) the actual procedure will be done by a laparoscopy, and a stone (temporary colostomy bag. This would only be needed if something does go wrong with my bowel and it will then need time to heal.
After that he will refer us for IVF. Like I said I am happy that we are moving on and now know what is happening now. All this starts next month, because I have already started this month’s Clomifene cycle. So it is the last chance saloon for a while this month. I am worried about a reoccurrence of last year but if it happens there is nothing that I can do about it. At the end of the day it will be worth it in the end. Just get through this month then next month’s period and then I get to give my body a rest from the constant pain before I have my operation.
I wish that this nausea would settle down as well as my pain. I thought that the nausea this morning was just due to my hospital appointment but I was wrong I have had it all day. Please go away.
I have already told my supervisor at work that I am to have another operation in September and that I will explain properly when he is in on Thursday. Tomorrow I will go into work slightly earlier and have a word with the PR manager to let her know what is happening. It is a shame that she is leaving as she understands Endometriosis (she suffered from it before she had her children) and is really supportive. She leaves in July I just hope that the person taking over her job is going to be as understanding as she is.
Well I have taken my last Clomifene. It was such an odd feeling knowing that whatever happens this month (pregnant or not) I shall not be having any more periods for a while either because I am pregnant or because I have started Prostrap. I am sitting in the garden in this lovely hot weather listening to the birds singing and the buzz of a bee moving from flower to flower thinking about how I feel this month. It is a big change everything in my life since 3rd September 2011 is about to change. I know both scenarios (pregnancy/Prostrap) will be for the better and my body should hopefully get a rest for a while. I think deep down I know that I will have to have the Prostrap and operation. I already know that I will not get pregnant this month but I must try and keep hopeful. I will try but I know it is going to be hard.
My period went on for 8 days one day it would be heavy the next hardly anything then heavy again back to a medium flow. Really strange for my periods to be like that. Normally they start heavy and gradually get lighter until about day 6 or 7 when I am barely spotting which then lasts for a few days. I am still spotting now on day 11. I am still getting cramps in my abdomen and both left and right sides of my pelvis. The pain is going round to my lower back. Talking of my back whenever I sit or lay down I get a feeling that I have never had before it feels like a lot of pressure going up my spine (only the lower part). And I guess it is where my kidney is on my right side it feels like that area is swollen and there is a lot of pressure being but on that area. It feels extremely uncomfortable. On a good side my energy levels have yet again come back to normal. It took so long, the whole of my period took so much effort to even get out of bed, and on some days I just could not even do this simple task. I have just been for a wee and my whole abdomen and where all that pressure is just contracted. I am sure it will all settle down after all I am only a few days after my period. Just hope it will settle before Sunday. We are having our first BBQ in our house. I cannot wait, just hope that the weather is as lush as it has been this weekend. I know it is meant to be rainy and thunderstorms from tomorrow onward. Let it get it out of its system now then be lovely on Sunday please. And Monday for that fact as it is the Surrey County Show. Then the weather can do whatever it likes.
OH MY GOD I over done it yesterday I felt sore last night but thought that it would pass. But when I woke this morning I was very sore. It just seems to be getting worse. I cannot sit without the pressure shooting pain up my lower back and around my right side.